Project Lead:

Dr. Patrick McDonald

Project Description:

The time of initial diagnosis of a pediatric neurosurgical conditions such as hydrocephalus, spina bifida, epilepsy, craniofacial disorders or a brain tumour, is a time of tremendous stress and worry for families and patients, accompanied by feelings of helplessness. There is ample evidence linking anxiety with physiological stress in parents dealing with a new diagnosis in a child, and evidence that diminished anxiety helps with the stress response.

The objective of this project is to develop a Pediatric Neurosurgery Peer and Support Network with the hypothesis that matching patients and families with newly diagnosed pediatric neurosurgical conditions with volunteer patients and families previously diagnosed and treated for the same condition will reduce feelings of helplessness, worry, and stress.

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